This post will detail Thomas' journey through school only--Later posts will address our reactions/feelings as well as brother's
Thomas was diagnosed with Autism at three years of age, something we had suspected for almost a year as his development had regressed, delayed, or disappeared altogether. His once articulate speech was reduced to screams, screeches or brief loud shouting demands. His potty training, almost complete, now regressed back to diapering; the alternative being soiled underwear as he no longer saw fit to use the commode. It was disheartening and frustrating as Thomas was so bright and talkative. To further complicate things, we were also raising a younger brother who was already mirroring Thomas' behavior.
Thank fully the school district has an early intervention program(ECI) and we were able to get him into a class called PPCD-preschool program for children with disabilities. PPCD was a mixed blessing as it was all new-bus ride to a new but foreign environment-a school classroom with rigid rules in accord with Applied Behavioral Analysis guidelines. Bless those first year teacher and aides for Thomas is a stubborn as they come and in those early months they had their hands full.
The thing about autistic children is they thrive on structure, a regularity throughout the day rivalling any neurotypical human who claims to have OCD. Thomas thrived knowing the rules of the room and how his day would go. That was all he knew though, there was no flexibility to changes. How he learned something or saw something, that was how it had to be every subsequent time. So anytime the teacher wanted to make an adjustment to schedules or how they did an activity, it could result in a meltdown as Thomas' couldn't cope with adjusting to the change. A great example was at Thanksgiving celebration in the classroom-parents were present, the schedule was different, and a special meal was to be had in the room with family members. That's a lot of new stuff for him to accommodate. Up to now Thomas had been learning how to transition to activities via a timer; when the timer went, it was time for the next activity no matter what. If Thomas finished 5 minutes early, he would wait for the timer to go off 5 minutes later before starting the next one. So this day the teacher set the timer for how long everyone had to enjoy their meal before we had to clean up and prepare for the bus. Thomas interpreted the timer as the amount of time before he was allowed to eat and there was no convincing him otherwise, even though the rest of the people in the room were eating. So he waited and waited for the timer to go off and of course had very little time to eat as everyone else was packing up.
There are reasons for this I won't go into depth here, however I will say we later learned from the Son Rise Program that these behaviors were a protective measure, a defense mode for Thomas as he didn't know how to effectively communicate frustration or appropriately adjust to changes. In other words his stagnation was protecting himself from being overwhelmed, rather than allow himself to be overwhelmed by something foreign/new, he would be stuck and oppositional to change.
It is this we will address in depth throughout our program.
A Dad shares the journey of his own creations-that of his son's; one Autistic and one neurotypical.
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Saturday, January 24, 2015What happened
It has been said somewhere that Life is what happens as we are making other plans. So much happened when we moved to Texas from Alaska, Thomas was 2 months old, we had bought a house, I had lost my planned "career" job(my position had been "eliminated"), and I was working a thanklessly frustrating job that was wearing me down inside and out. Traci had to return to work since my income alone wasn't going to keep us in our new home and feed us. This was rough for her, she had been working with autistic children for 20 years and was ready to be a mom and housewife.
Something had to change, six months after taking all the required classes I began a new career as an EMT and have since continued my training to the paramedic level. Traci discovered we were pregnant with Ian the same week we lost her youngest brother Timmy in an accident. Then we lost a beloved aunt the week before Ian's birth. I was working two part time jobs and going to community college to for EMT classes during this time and everything was a mess, in limbo. No consistency at home and no light at the end of the tunnel, so to speak. Looking back now at that inconsistency, the frustration, the whole energy of the situation; how did that affect Thomas? Sunday, January 11, 2015Welcome back
A lot has occurred since my initial undertaking of this blog. Thomas has since been diagnosed with Autism, actually right after his 3rd birthday. Ian is now 4 and has grown into (and out of) that big belly of his. He also thinks he is 6 years old and can get away with the same eccentric behavior as his brother. Best of all though, Traci and I haven't driven each other crazy yet!
So what does our return mean? Online media being what it is now(as opposed to when I initially began this), it is yet another way for me to share the journeys of two young men and one not-yet-old man all Life throws at them.
EVERY DAY IS A GIFT
Monday, November 15, 2010Sunday, August 8, 2010Fw: Be prepared for a NEW looking THOMAS
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