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Sunday, February 8, 2015

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Hi Realmdc.thomasliam@blogger.com!
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The offline donations have picked up. This is great because of the fees. We also have our flights covered by donated miles. We never though this campaign would do so wel...
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Then there's Ian

Ian, as best we could tell, was conceived within days of Traci losing her youngest brother Timmy in a motor vehicle accident.  He was welcomed despite the surprise, and hasn't stopped surprising us.  No such thing as going quietly in the night for this one.  Ian has a personality I am constantly describing as tenacious.  Ian is like whitewall tires as described by Luigi in the animated movie "Cars"- HERE I AM! LOOK AT ME! LOOOOOVE ME!
     He has always tried to be like his older brother too,  He was trying to walk before he could crawl, following his big brother around.  When Ian started crawling it lasted about a week and a half; he was in such a hurry to catch up to Thomas. I couldn't figure out what the rush was until one day I caught Ian running past me to Thomas, pull Thomas' pacifier out of his mouth and try to run off with it.  I had yet,to that day, to see a 1 year old outrun a 3 yr old and it didn't happen that day either.  Thus the brotherly competition began.



Despite being two years junior to Thomas', Ian outweighs him by nearly 5 lbs.  They play and wrestle and fight, which was of concern initially since it got rough-kicking, scratching punching and hair pulling.  The more I talked around and others saw them together, I was reassured this is typical brother fighting behavior. Ian usually instigates, Thomas' is the "finisher", he doesn't play around, he ends it! Unfortunately his tendency to persevere means "not letting go" once Ian has submitted or effected a retreat, so we still have to keep a watchful eye when they have a disagreement.
On the bright side Ian's tenacious personality does involve Thomas in conversations and activities he might otherwise avoid and helps him learn interaction with peers.  Thomas can spend hours alone with legos or watching a show, (if we were to let him have the TV for that long,that is).   However Ian will engage him regularly and endeavors to include Thomas in a lot of his toy adventures.

Saturday, February 7, 2015

Thomas regressess

This post will detail Thomas' journey through school only--Later posts will address our reactions/feelings as well as brother's
Thomas was diagnosed with Autism at three years of age, something we had suspected for almost a year as his development had regressed, delayed, or disappeared altogether.  His once articulate speech was reduced to screams, screeches or brief loud shouting demands.  His potty training, almost complete, now regressed back to diapering; the alternative being soiled underwear as he no longer saw fit to use the commode.  It was disheartening and frustrating as Thomas was so bright and talkative.  To further complicate things, we were also raising a younger brother who was already mirroring Thomas' behavior. 
Thank fully the school district has an early intervention program(ECI) and we were able to get him into a class called PPCD-preschool program for children with disabilities.  PPCD was a mixed blessing as it was all new-bus ride to a new but foreign environment-a school classroom with rigid rules in accord with Applied Behavioral Analysis guidelines.  Bless those first year teacher and aides for Thomas is a stubborn as they come and in those early months they had their hands full.


The thing about autistic children is they thrive on structure, a regularity throughout the day rivalling any neurotypical human who claims to have OCD.  Thomas thrived knowing the rules of the room and how his day would go.  That was all he knew though, there was no flexibility to changes.  How he learned something or saw something, that was how it had to be every subsequent time.  So anytime the teacher wanted to make an adjustment to schedules or how they did an activity, it could result in a meltdown as Thomas' couldn't cope with adjusting to the change.  A great example was at Thanksgiving celebration in  the classroom-parents were present, the schedule was different, and a special meal was to be had in the room with family members.  That's a lot of new stuff for him to accommodate.  Up to now Thomas had been learning how to transition to activities via a timer; when the timer went, it was time for the next activity no matter what.  If Thomas finished 5 minutes early, he would wait for the timer to go off 5 minutes later before starting the next one.  So this day the teacher set the timer for how long everyone had to enjoy their meal before we had to clean up and prepare for the bus.  Thomas interpreted the timer as the amount of time before he was allowed to eat and there was no convincing him otherwise, even though the rest of the people in the room were eating. So he waited and waited for the timer to go off and of course had very little time to eat as everyone else was packing up.
There are reasons for this I won't go into depth here, however I will say we later learned from the Son Rise Program that these behaviors were a protective measure, a defense mode for  Thomas as he didn't know how to effectively communicate frustration or appropriately adjust to changes. In other words his stagnation was protecting himself from being overwhelmed, rather than allow himself to be overwhelmed by something foreign/new, he would be stuck and oppositional to change.
It is this we will address in depth throughout our program.

Tuesday, January 27, 2015

David has posted a new update (1 New Photo)...

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NEW UPDATE
Hi Realmdc.thomasliam@blogger.com!
A new update message has been posted to
GoFundMe Campaign Photo Help Thomas beat Autism
I just realized donor level items were created but not visible on the fund page. If you did contribute but did not leave and address contact me davecroke@yahoo.com or leav...
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A message from David W Croke...
My wife Traci and I were concerned for our beloved Thomas when, around 2 years of age, his development regressed.  He would have screaming fits for no apparent reason. Thomas' developing speech diminished to screamed demands or scripted dialogue from movies/shows; he also began repetitive spinning of toy car wheels and plane propellers. And he made no eye contact with anyone, he just stopped looking at us with those beautiful, deep brown eyes.

 Thomas was diagnosed with autism at 3 yrs of age.  He has been receiving ABA therapy and making it through public school with "meltdowns".  Going out to dinner or shopping is still out of the question due to his extreme reactions to stimuli, throwing himself/items on the floor or even running out of the building.
 

We attended the The Son-Rise Program® Start-Up and saw immediate results; we reduced the environmental factors that contributed to Thomas' tantrums, changed our attitude about his behaviors, and found ways to help him transition to new situations.  We saw a decrease in meltdowns and he was generally calmer within the home.
While things are better in the home, that behavior change has unfortunately reached a plateau.  In school Thomas has significant trouble accommodating the environment; he is reacting violently to others and situations with an intensity and duration such that he has been moved to a more restrictive environment , i.e. away from our goal of a mainstream classroom.  This is not what we want for our son.  We know there is so much more we can do to help Thomas develop into an independent and thriving child who loves "our world", feels safe and trust others, however we cannot do the next step alone
 
Few autism treatments are covered by insurance, much less a home based/parent led/child-centered one such as ours.  The class is called The Son-Rise Program® Maximum Impact and is in April 2015.  This fund is to cover costs for travel and training of Traci and I at the center in Sheffield, Massachusetts.  This course gives us more skills and techniques as well as train/prepare our volunteers.  The expenses for travel and course fees total 8250.00.   A teacher and a paramedic do not make enough to cover this large of a one-time expense.

Thomas is an amazingly bright and loving son struggling to accommodate the world surrounding him. If you can help us, even in your prayers, know that you will be supporting Thomas' move into a mainstream environment, be independent and one day contribute in a meaningful way
 

This is where you can help.  Please make a donation today to help Thomas recover from Autism. PLEASE! Continue Reading >>

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Saturday, January 24, 2015

What happened

      It has been said somewhere that Life is what happens as we are making other plans.  So much happened when we moved to Texas from Alaska, Thomas was 2 months old, we had bought a house, I had lost my planned "career"  job(my position had been "eliminated"), and I was working a thanklessly frustrating job that was wearing me down inside and out.    Traci had to return to work since my income alone wasn't going to keep us in our new home and feed us.  This was rough for her, she had been working with autistic children for 20 years and was ready to be a mom and housewife.



     Something had to change, six months after taking all the required classes I began a new career as an EMT and have since continued my training to the paramedic level.  Traci discovered we were pregnant with Ian the same week we lost her youngest brother Timmy in an accident.  Then we lost a beloved aunt the week before Ian's birth. I was working two part time jobs and going to community college to for EMT classes during this time and everything was a mess, in limbo.  No consistency at home and no light at the end of the tunnel, so to speak.  Looking back now at that inconsistency, the frustration, the whole energy of the situation; how did that affect Thomas?   

Sunday, January 11, 2015

Welcome back

   A lot has occurred since my initial undertaking of this blog.  Thomas has since been diagnosed with Autism, actually right after his 3rd birthday.  Ian is now 4 and has grown into (and out of) that big belly of his. He also thinks he is 6 years old and can get away with the same eccentric behavior as his brother.  Best of all though,  Traci and I haven't driven each other crazy yet!
    So what does our return mean?  Online media being what it is now(as opposed to when I initially began this), it is yet another way for me to share the journeys of two young men and one not-yet-old man all Life throws at them.

 
EVERY DAY IS A GIFT

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